Best 4 quotes of Silvia Corradin on MyQuotes

Come to think of it, I could not even think of a movie or TV shows where they had a baby die, with the sole exception of a couple of episodes of “Little House on the Prairie” and perhaps soaps. I was beginning to understand this was truly “the” unspeakable loss, “the” invisible loss, a loss so great nobody wanted to talk about it; a loss so inconceivable and so horrible that many people declared it as being the most overwhelmingly painful experience of their life; the death of which they were least prepared for. I was beginning to understand. My grief was colossal and all-encompassing. No loss is more difficult to accept and feels more unnatural and less understood

I hate to say this, but I am still holding somewhat of a grudge at the people that could have come to the funeral but didn't, especially when they came up with some lame excuse how it was too sad or how they were afraid of cemeteries or whatever. No justification in the world could make up for you not being there when someone needs you. Period.

I was very upset at how his skin was peeling off so badly anywhere, but nobody gave it a second thought. They told me it was ‘normal’. Of course this was far from normal. There was no way they could have known about EB (Epidermolysis Bullosa) back then considering the rarity of the disorder. The only way to diagnose EB it is through a skin biopsy, and they would need to suspect EB to send it to the correct lab. It would not be until Nicky was born 21 months later that every Doctor imaginable was all of a sudden extremely interested in seeing photos of Alex. “Oh yeah” the dermatologist that diagnosed Nicky and Doctor McGuire at Stanford said to me unequivocally, “Alex for sure had EB.” How EB could have caused his demise though is still a mystery. Doctor Marinkovich at Stanford told me that many babies with EB are indeed stillborn, but could not tell me why. At this point however, in the delivery room, we were completely oblivious about EB and would remain so for nearly two years

Thinking back, it was such a surreal day; when I wasn’t sitting or crying I slowly paced the house like a zombie, waiting and weeping. I did not watch TV, read or listen to the radio. I was just ‘there’, thinking too much. Our old life, the one that included and was planned around the son we were fervently awaiting, was over. Our new life, the one where we had to learn to live without him, had not yet begun. We were in limbo. He was gone but he was with us. Was I still pregnant? I surely looked pregnant, but my baby was no longer alive inside of me, and I carried him inside of me not because of courage or dedication, but because I had to.