Best 48 quotes in «chronic pain quotes» category

Lily had lived with the same pain for so long it felt like a part of her. The worst days, though, were when the pain was different. When it came faster, or harsher, or fiercer than she was used to. When it prickled instead of throbbed. When it attacked her right ankle instead of her left knee. When it woke her up at night instead of aching dully first thing in the morning. On those days, her standard-issue pain was replaced by something different and frightening, something that took over her body and left her without the slightest clue of when, or even if, it would release her. Those times, her pain wasn’t a part of her anymore. Those times, she was a part of it.

My name is CRPS, or so they say But I actually go by; a few different names. I was once called causalgia, nearly 150 years ago And then I had a new name It was RSD, apparently so. I went by that name because the burn lived inside of me. Now I am called CRPS, because I have so much to say I struggle to be free. I don't have one symptom and this is where I change, I attack the home of where I live; with shooting/burning pains. Depression fills the mind of the body I belong, it starts to speak harsh to self, negativity growing strong. Then I start to annoy them; with the issues with sensitivity, You'd think the pain enough; but no, it wants to make you aware of its trembling disability. I silently make my move; but the screams are loud and clear, Because I enter your physical reality and you can't disappear. I confuse your thoughts; I contain apart of your memory, I cover your perspective, the fog makes it sometimes unbearable to see. I play with your temperature levels, I make you nervous all the time - I take away your independance and take away your pride. I stay with you by the day & I remind you by the night, I am an awful journey and you will struggle with this fight. Then there's a side to me; not many understand, I have the ability to heal and you can be my friend. Help yourself find the strength to fight me with all you have, because eventually I'll get tired of making you grow mad. It will take some time; remember I mainly live inside your brain, Curing me is hard work but I promise you, You can beat me if you feed love to my pain. Find the strength to carry on and feed the fears with light; hold on to the seat because, like I said, it's going to be a fight. But I hope to meet you, when your healthy and healed, & you will silenty say to me - I did this, I am cured is this real? That day could possibly come; closer than I want- After all I am a disease and im fighting for my spot. I won't deny from my medical angle, I am close to losing the " incurable " battle.

My doctors, who are not cavalier with prescriptions, give me this medication because I have earned their trust. And yet, with mounting government and public pressure, my doctors’ hands are becoming increasingly tied. They apologetically explain to me why they are required to make the medication even harder for me to get, against their own medical judgment. If the day ever comes when they aren’t allowed to prescribe Percocet to me at all, it may well be the end of the minimal quality of life I fight so hard to achieve.

Personalized medicine is an art that advocates for the patient, not the pocket or convenience of the medical system.

Pain is a portal to transformation, It does not knock politely.

Pushing our pain aside...diminishes our human experience.

Pushing ourselves to do too much despite the pain will not result in gain but may cause additional injury. However, sometimes we do need to push ourselves to get up and move around to avoid becoming stiff and actually increasing our pain.

Several medical professional organizations acknowledge the utility of opioid therapy and many case series and large surveys report satisfactory reductions in pain, improvement in function and minimal risk of addiction.

Sometimes, this disapproval of how you are managing your pain crosses over to disbelief that you are in as much pain as you say you are. They don’t believe that your pain is a legitimate enough reason to rest or nap or cry or take narcotic medications or not go to work or to go to the doctor. They might think that you are making too big of a deal out of it. They doubt the legitimacy of the pain itself. This kind of stigma is the source of the dreaded accusation that chronic pain is “all in your head.” It’s as if to say that you are making a mountain out of a molehill.

Since my symptoms began 13 years ago, I’ve tried every form of pain management I could access — NSAIDS, nonopioid analgesics, neurologic medications, acupuncture, laser therapy, physical therapy, prolotherapy, massage, and trigger-point injections. Most of these have been unhelpful; others provide temporary relief, often at great expense. At the end of the day, when my body is fully depleted of its resources and in the most pain, a single dose of Percocet is the only tool that silences the pain enough for me to fall asleep. I honestly don’t know what I’d do if Percocet became unavailable to me, and the very thought scares me. I’ve been taking it for five years. To avoid any chance of addiction, I only take it at night and have stayed on a consistently low dose.

Terry recalled far better days when she'd risen bright and early every morning.... Days before darkness had closed in and refused to leave....

Tell me, what kind of functions does pain have when one is convicted to 100 whippings in Saudie Arabia? You claim pain has a function, I claim that's scientific rubbish. The only thing pain really does is cause an instant reaction that is not rational and usually quite erratic. The famous example of the hand in boiling water, for example. You say it proves pain has a function. But exactly because of the spasmic reaction lots and lots of people will drop the bowl with boiling water over their entire bodies causing serious burns. So what was the 'function' of this pain? Pain and fear cause confusion and trauma. If pain actually did have a rational function, chronic pain would not exist.

the media, at least in the U.S., tends to focus on pain pill use, abuse, and addiction by people who do not have chronic pain. Even if these stories offhandedly mention that these pills are used to treat pain in people whose physical pain does not go away, however, the stories of those who use pain medicine responsibly -- or, worse, accused of drug-seeking behavior because they need certain types of pills for chronic pain -- are usually overshadowed by the “How can we prevent pain pill addiction?” concern, instead of asking, “How can we treat chronic pain more effectively?

The addiction crisis is terrifying, and many people don’t comprehend appropriate opioid use. When I first started taking pain medication, I remember a family member saying, “Dianne, you’re going to become an addict!” We need to help people understand that taking pain medicine to maximize one’s ability to be productive and to sustain enriching relationships is very different than the disease of addiction, which limits one’s ability to contribute to society and maintain healthy habits.

the media coverage of the ‘opiate epidemic’ as driven by pill pushing-doctors and by pain patients worries me a lot, and I think it is already being used to forward the idea that people in chronic pain should not have access to relief from their pain.

That pain moves when you move; it mutters between every breath; it spikes your ears; it rips. You think pain can’t be any more horrible than that. Until you discover that the well is bottomless. There’s always more.

There are a lot of victims when it comes to addiction. I know there's an overdose epidemic. We see those faces. But then I see these other faces - the ones who commit suicide because they can't handle the pain. Those faces mean just as much to me.

There’s a saying that goes something like: ‘We are all one drink or pill away from addiction,’ and I know this is meant to destigmatize what addicts go through, but I feel like I’ve been seeing variations on this ‘common knowledge’ more and more lately being used (on social media) as a cudgel to remind patients to not overdo it,” Anna says, speaking to the dual-edged sword of awareness. A motto designed to humanize the experience of addiction has been turned into a weapon that targets people who rely on opioids for pain management, and that translates to real-world stigma.

The strong, ferocious wind just made the chill worse, and as it blew around me, electric bursts of pain shot through my body.

The trouble with chronic pain is that it is so easy to become accustomed to it, both mentally and physically. At first it's absolutely agonizing; it's the only thing you think about, like a rock in your shoe that rubs your foot raw with every step. Then the constant rubbing, the pain and the limp all become part of the status quo, the occasional stabbing pain just a reminder. You are so set to endure, hunched against it - and when it starts to ease, you don't really notice, until the absence washes over you like a balm.

We have a genuine and devastating epidemic of opiate abuse in this country, and it is of critical importance that this problem be addressed. But we must do so in a way that doesn’t cut off an effective (and often the only) treatment for the chronically ill, many of whom are able to function in this world at all only because of the small respite that responsible opiate use provides.

When all you know is pain you don’t know that that is not normal. It is not a woman’s lot to suffer, even if we’ve been raised that way. It is not OK to miss a part of your life because of pain and excessive bleeding. It is not OK to be bed-ridden for two-to-three days a month. It is not OK to pain during sex. It is not OK to have major bloating or nausea." (Address, 2011 Endometriosis Foundation of America Blossom Ball)

Which would give her an ulcer first? All the aspirin and prescription pain medication she took, or Jack Carlton? Then again, that left only one cause, since he was the reason she needed the drugs to begin with.

The stigma of chronic pain is one of the most difficult aspects of living with chronic pain. If you have chronic pain, people can sometimes judge you for it.

The video was still playing, although I didn't know why. It seemed as if the able-bodied dancers were mocking me.

The weekend was a much-needed breath of fresh air; Monday always seemed to not only take that breath right back, but add a few extra pounds to my shoulders as well.

Too much profit is being made at the expense of unsuspecting patients.

What is rational in the practice of thoughtful medicine is impractical for the system.

Appearing nude on film was not easy when I was twenty-six in Body Heat; it was even harder when I was forty-six in The Graduate, on the stage, which is more up close and personal than film. After my middle-age nude scene, though, I unexpectedly got letters from women saying, "I have not undressed in front of my husband in ten years and I'm going to tonight." Or, "I have not looked in the mirror at my body and you gave me permission." These affirmations from other women were especially touching to me because when I began The Graduate I'd just come through a period when I felt a great loss of confidence, when my rheumatoid arthritis hit me hard and I literally couldn't walk or do any of the things that I was so used to doing. It used to be that if I said to my body, "Leap across the room now," it would leap instantly. I don't know how I did it, but I did it. I hadn't realized how much my confidence was based on my physicality. On my ability to make my body do whatever I wanted it to do. I was so consumed, not just by thinking about what I could and couldn't do, but also by handling the pain, the continual, chronic pain. I didn't realize how pain colored my whole world and how depressive it was. Before I was finally able to control my RA with proper medications, I truly had thought that my attractiveness and my ability to be attractive to men was gone, was lost. So for me to come back and do The Graduate was an affirmation to myself. I had my body back. I was back.

A common misconception is that some people are only in pain because they are weak, anxious, depressed, or do not deal well with stress. This is not correct. Every experience you have — touch, warmth, itch, pain — is created by the brain and thus is all in your head, but it does not mean they are not real. Things like fear, anxiety, or depression can increase pain levels and can increase the chance of persistent pain. But often, these feelings only develop after a person already has chronic pain.

Anyone who takes opioids on a regular basis will become dependent upon them, meaning they will have to taper off gradually to avoid withdrawal symptoms. But very few chronic pain patients exhibit the compulsive drug-seeking behaviors of someone who is addicted.

The weaker we feel, the harder we lean on God. And the harder we lean the stronger we grow.

Those who become mentally ill often have a history of chronic pain.

But I had to think to myself that this was normal, because that was the attitude. I was 19 when I went to see my doctor and I was told it was all in the mind. [Author Hilary Mantel on being told her endometriosis was imagined pain, From Oct 2009 Daily Mail interview]

Chronic pain patients like me are not the cause of the opioid crisis; only 22% of those who misuse opioids are prescribed them by a doctor, and only 13% of ER visits for opiate overdoses were chronic pain patients. Most chronic pain patients are rule-followers who just want to function.

Despite what appears to be a low risk of addiction in naïve, chronic pain patients, it is reasonable to ask how much harm is actually done to patients with chronic pain by withholding opiate analgesics.

Deepening awareness and nonjudgmental acceptance of one’s thoughts fosters a new relationship with them, creating the space to purposefully shift mental focus away from the ruminative thought patterns that pave the road to suffering.

Having a chronic illness, Molly thought, was like being invaded. Her grandmother back in Michigan used to tell about the day one of their cows got loose and wandered into the parlor, and the awful time they had getting her out. That was exactly what Molly's arthritis was like: as if some big old cow had got into her house and wouldn't go away. It just sat there, taking up space in her life and making everything more difficult, mooing loudly from time to time and making cow pies, and all she could do really was edge around it and put up with it. When other people first became aware of the cow, they expressed concern and anxiety. They suggested strategies for getting the animal out of Molly's parlor: remedies and doctors and procedures, some mainstream and some New Age. They related anecdotes of friends who had removed their own cows in one way or another. But after a while they had exhausted their suggestions. Then they usually began to pretend that the cow wasn't there, and they preferred for Molly to go along with the pretense.

Government agencies are trying to get doctors to cut back on prescribing opioids. I understand that they need to do something about the epidemic of overdoses. However, labeling everyone as addicts, including those who responsibly take opioids for chronic pain, is not the answer. If the proposed changes take effect, they would force physicians to neglect their patients. Moreover, legitimate pain patients, like myself, would be left in agony on a daily basis.

Healing severe or chronic pain, I believe, includes transforming our relationship to the pain, and, ultimately, it is about transforming our relationship to who we are and to life.

I currently take Lortab, which is a combination of acetaminophen and hydrocodone. I’d rather not take this medication, or any medication for that matter, but it is the only one that controls my pain adequately enough to allow me to function on a daily basis... I take the smallest dose possible to enable me to remain as clear-headed as possible to do what I need to do each day... Even with the minimal opioids I take, I still have pain all the time, 24 hours a day; without opioids, life would be torture.

In the debate over opioid addiction, there’s one group we aren’t hearing from: chronic pain patients, many of whom need to use the drugs on a long-term basis.

In the car inching its way down Fifth Avenue, toward Bergdorf Goodman and this glamorous party, I looked back on my past with a new understanding. This sickness, the “endo-whatever,” had stained so much—my sense of self, my womanhood, my marriage, my ability to be present. I had effectively missed one week of each month every year of my life since I was thirteen, because of the chronic pain and hormonal fluctuations I suffered during my period. I had lain in bed, with heating pads and hot-water bottles, using acupuncture, drinking teas, taking various pain medications and suffering the collateral effects of them. I thought of all the many tests I missed in various classes throughout my education, the school dances, the jobs I knew I couldn’t take as a model, because of the bleeding and bloating as well as the pain (especially the bathing suit and lingerie shoots, which paid the most). How many family occasions was I absent from? How many second or third dates did I not go on? How many times had I not been able to be there for others or for myself? How many of my reactions to stress or emotional strife had been colored through the lens of chronic pain? My sense of self was defined by this handicap. The impediment of expected pain would shackle my days and any plans I made. I did not see my own womanhood as something positive or to be celebrated, but as a curse that I had to constantly make room for and muddle through. Like the scar on my arm, my reproductive system was a liability. The disease, developing part and parcel with my womanhood starting at puberty with my menses, affected my own self-esteem and the way I felt about my body. No one likes to get her period, but when your femininity carries with it such pain and consistent physical and emotional strife, it’s hard not to feel that your body is betraying you. The very relationship you have with yourself and your person is tainted by these ever-present problems. I now finally knew my struggles were due to this condition. I wasn’t high-strung or fickle and I wasn’t overreacting.

I had learned quickly that life doesn't always go the way I want it to, and that's okay. I still plod on.

I will be living with chronic pain for the rest of my life. I don’t have the mobility, energy or life options I used to have. I work hard to manage the pain, and I want the medical system to be a respectful and effective partner, not a jailer. The opioid crisis is not my doing.

I surmise that later generations will likely scoff at the means by which we are currently addressing pain as well.

I take opioids to treat chronic pain. Stigmatizing them will harm me.

It's not easy to diagnose because depending where the endometrial deposits are, the symptoms can be quite different. It's an unrecognized problem among teenage girls, and it's something that every young woman who has painful menstruation should be aware of ... it's a condition that is curable if it's caught early. If not, if it's allowed to run on, it can cause infertility, and it can really mess up your life. [Author Hilary Mantel on being asked about being a writer with endometriosis, Nov 2012 NPR interview]